Advocacy
On May 7–10, 2025, representatives from the ALS Network joined other nonprofit organizations at the second annual ALS Community Summit, hosted by I AM ALS in Washington, D.C. This four-day…
In response to federal research funding cuts, Marc Weisskopf, a professor in the Environmental Health Department at Harvard’s T.H. Chan School of Public Health, states, “It poses a tremendous threat…
This week, several ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage our…
People living in California can help fund amyotrophic lateral sclerosis (ALS) research when filing their state taxes. The California ALS Research Network Voluntary Tax Contribution Fund allows Californians to contribute…
On Thursday, March 27, the ALS Network hosted an engaging Lunch and Learn session with our Policy and Advocacy Manager, Allison Nadeau, MPH, MBA. Attendees gained an inside look at…
Join the ALS Network for the 2025 Community Summit hosted by I AM ALS on May 7-10, 2025 in Washington, D.C. ALS Network is proud to once again sponsor this…
(PDF link) The Honorable Matthew J. Memoli, M.D., M.S.Acting DirectorNational Institutes of Health9000 Rockville Pike,Bethesda, Maryland 20892 Re: NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost…
Alongside incredible ALS advocates and colleagues, the ALS Network had impactful discussions on public policy priorities for the ALS community at the More Than Our Stories conference – a grassroots…
At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…
Starting January 1, 2025, California Assembly Bill 2123 (AB 2123) will make it easier for family caregivers to access paid family leave (PFL). The law removes the requirement for employees…