Advocacy

Help Shape ALS Network’s 2025 Advocacy Priorities

December 5, 2024 Comments Off on Help Shape ALS Network’s 2025 Advocacy Priorities

At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…

California’s AB 2123 to offer caregivers access to paid family leave

November 15, 2024 Comments Off on California’s AB 2123 to offer caregivers access to paid family leave

Starting January 1, 2025, California Assembly Bill 2123 (AB 2123) will make it easier for family caregivers to access paid family leave (PFL). The law removes the requirement for employees…

Soaps in Depth: Exclusive: Kate Linder on Using Her Mother’s Art for a Good Cause

November 8, 2024 Comments Off on Soaps in Depth: Exclusive: Kate Linder on Using Her Mother’s Art for a Good Cause

Talent clearly runs in the family of The Young & The Restless star Kate Linder (Esther). Her late mother, Molly Wolveck, was an accomplished painter and her work is being…

Daytime Confidential: Y&R’s Kate Linder and ALS Network Team Up For Art Show to Honor Late Mother’s 100th Birthday

November 6, 2024 Comments Off on Daytime Confidential: Y&R’s Kate Linder and ALS Network Team Up For Art Show to Honor Late Mother’s 100th Birthday

The Young and the Restless star Kate Linder (Esther Valentine) and ALS Network have partnered to honor her mother’s life. Linder will host “An Afternoon of Art,” featuring the works…

Register to Vote in Your State

October 15, 2024 Comments Off on Register to Vote in Your State

ALS advocates demonstrate their strength and impact by sharing personal experiences with legislators and urging support for policies that enhance the quality of life for those affected by ALS. Another…

ALS Network announces partnership with ALS News Today in support of ALS community

October 10, 2024 Comments Off on ALS Network announces partnership with ALS News Today in support of ALS community

ALS Network is excited to announce our partnership with ALS News Today, a Bionews brand that is dedicated to providing trusted information, news and connections that help to empower the…

The ALS Network supports permanent Medicare coverage for telehealth services

October 3, 2024 Comments Off on The ALS Network supports permanent Medicare coverage for telehealth services

The ALS Network strongly supports permanent Medicare coverage for telehealth services, including audiology and speech-language pathology (SLP) which is set to expire on December 31, 2024. Telehealth has been essential…

Governor Gavin Newsom Signs California Law Establishing the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC)

September 30, 2024 Comments Off on Governor Gavin Newsom Signs California Law Establishing the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC)

The ALS Network commends Governor Gavin Newsom for signing AB 2613 into law. This bill establishes the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC), making California the 29th state…

Golfers Gather in support of the ALS Community

September 9, 2024 Comments Off on Golfers Gather in support of the ALS Community

The 2024 annual Petersen International Underwriters ALS Golf Classic was held on September 9 at The Oaks Club in Valencia.  Honorary Chair, Thomas Petersen of Petersen International Underwriters, along with…

Advocates from the ALS Network present at the 2024 ALS Community Summit

August 2, 2024 Comments Off on Advocates from the ALS Network present at the 2024 ALS Community Summit

From May 29 – June 1, 2024, many ALS advocates  and supporters from the ALS Network and other ALS nonprofit organizations participated in the inaugural ALS Community Summit, hosted by…