Advocacy
After two incredible summits in 2024 and 2025, End the Legacy’s 2026 Genetic ALS & FTD Community Summit is returning to Sacramento, CA, September 24–26, 2026. Hosted by ALS Network,…
Our ALS community came together with a unified message to Congress: sustained investment in ALS research is essential to accelerate treatments and move us closer to cures. The ALS Network…
ALS is a rapidly progressive, fatal disease—and for most patients, treatment options remain limited. Families don’t have the luxury of waiting years for the traditional drug development timeline. That’s why…
ALS Network celebrates the power of advocates whose sustained action, working alongside bipartisan leaders in Congress, helped secure meaningful new investments in ALS research in the fiscal year 2026 (FY26)…
We are pleased to share an important advocacy win that will directly benefit people living with ALS and their families across Los Angeles County. In early November, the ALS Network…
Texas voters Tuesday approved Proposition 14, which creates a state-funded dementia research facility and sets aside money aimed at prevention of the disease. SJR 3 authorizes the state comptroller to set…
Governor Gavin Newsom signed Senate Bill 590, expanding California’s Paid Family Leave program to include chosen and extended family members. This landmark legislation ensures Californians who pay into the Paid…
Here’s what’s happening in Washington, D.C., and how you can help safeguard ALS programs and research. Updates Earlier this summer, the President signed H.R. 1 — the “One Big Beautiful…
Dear Friends, I am grateful for your steadfast support of the ALS Network and invite you to read our new Impact Report. We are excited to share how your partnership powers our mission-critical…
On July 4, 2025, the budget reconciliation bill, H.R.1, was signed into law. The legislation includes changes to Medicaid, Medicare, and the Affordable Care Act (ACA), putting at risk the…