Advocacy
Texas voters Tuesday approved Proposition 14, which creates a state-funded dementia research facility and sets aside money aimed at prevention of the disease. SJR 3 authorizes the state comptroller to set…
Governor Gavin Newsom signed Senate Bill 590, expanding California’s Paid Family Leave program to include chosen and extended family members. This landmark legislation ensures Californians who pay into the Paid…
Here’s what’s happening in Washington, D.C., and how you can help safeguard ALS programs and research. Updates Earlier this summer, the President signed H.R. 1 — the “One Big Beautiful…
Dear Friends, I am grateful for your steadfast support of the ALS Network and invite you to read our new Impact Report. We are excited to share how your partnership powers our mission-critical…
On July 4, 2025, the budget reconciliation bill, H.R.1, was signed into law. The legislation includes changes to Medicaid, Medicare, and the Affordable Care Act (ACA), putting at risk the…
Letter To: Richard Hodes, MD, Director of the National Institute on Aging Walter Koroshetz, MD, Director of the National Institute of Neurological Disorders and Stroke National Institutes of Health, 9000…
June is Pride Month, and this year marks the 10th anniversary of a pivotal milestone in LGBTQ+ and civil rights history. On June 26, 2015, the U.S. Supreme Court issued…
On May 7–10, 2025, representatives from the ALS Network joined other nonprofit organizations at the second annual ALS Community Summit, hosted by I AM ALS in Washington, D.C. This four-day…
In response to federal research funding cuts, Marc Weisskopf, a professor in the Environmental Health Department at Harvard’s T.H. Chan School of Public Health, states, “It poses a tremendous threat…
This week, several ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage our…