Advocacy
At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…
Starting January 1, 2025, California Assembly Bill 2123 (AB 2123) will make it easier for family caregivers to access paid family leave (PFL). The law removes the requirement for employees…
Talent clearly runs in the family of The Young & The Restless star Kate Linder (Esther). Her late mother, Molly Wolveck, was an accomplished painter and her work is being…
The Young and the Restless star Kate Linder (Esther Valentine) and ALS Network have partnered to honor her mother’s life. Linder will host “An Afternoon of Art,” featuring the works…
ALS advocates demonstrate their strength and impact by sharing personal experiences with legislators and urging support for policies that enhance the quality of life for those affected by ALS. Another…
ALS Network is excited to announce our partnership with ALS News Today, a Bionews brand that is dedicated to providing trusted information, news and connections that help to empower the…
The ALS Network strongly supports permanent Medicare coverage for telehealth services, including audiology and speech-language pathology (SLP) which is set to expire on December 31, 2024. Telehealth has been essential…
The ALS Network commends Governor Gavin Newsom for signing AB 2613 into law. This bill establishes the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC), making California the 29th state…
The 2024 annual Petersen International Underwriters ALS Golf Classic was held on September 9 at The Oaks Club in Valencia. Honorary Chair, Thomas Petersen of Petersen International Underwriters, along with…
From May 29 – June 1, 2024, many ALS advocates and supporters from the ALS Network and other ALS nonprofit organizations participated in the inaugural ALS Community Summit, hosted by…