April is Volunteer Appreciation Month

Volunteer Month

Celebrating Generosity and Service to Our ALS Community

Volunteers provide help and hope to people living with ALS and their loved ones in so many ways, including participating in our community outreach events and raising much-needed funds; advocating for legislation by sending emails, making phone calls; and posting on social media to help raise ALS awareness and support for our organization.

Throughout this month, we will be sharing our gratitude for many of the ALS Network’s dedicated volunteers. Thank you to all of our volunteers for their incredible support of our mission and families facing ALS. Follow in their footsteps by signing up to be a volunteer today!

Giving the Gift of Themselves: ALS Network Board of Directors and Advisory Trustees

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The ALS Network is grateful to those who generously share their significant gifts of time, expertise, leadership, compassion, and funding in support of the ALS community. The ALS Network’s volunteer leadership and committee members are passionate about our mission and vision. We deeply appreciate these volunteers for who they are and what they do to support families facing ALS, and to fuel the search for effective prevention strategies, treatments and cures for ALS.

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“In order to try and come to terms with this devastating loss, both for myself and my children, I was looking for a way to try to make sense of it all. I thought, ‘I am going to find an organization that deals with this disease and I am going to volunteer’…The organization is very involved in caregiving, advocacy on both the federal and state level. and very involved in research.”

-Patty Schimbor, Esq.

Meet your ALS Network - Sue Morris

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Meet Sue Morris, a longtime ALS Network volunteer. After her husband, Mark Morris, passed away from ALS in 2010, Sue, a civic leader and humanitarian, sought to find impactful ways to support the ALS community.

Sue joined the ALS Network’s board in 2013 (the Golden West Chapter at the time), serving as vice-chair, and then as board chair from 2017- 2020. Always active in various board committee roles throughout her tenure, in 2024, Sue returned to a leadership position as the board vice chair.

With a deep recognition of the significant issues facing family caregivers, Sue and her family decided to support the mission of ALS Network by funding critically-needed programs and novel initiatives. Together, they launched the Morris Family Caregiver Initiative to help provide meaningful support to caregivers with a loved one with ALS.

In addition to her board service and dedicated support as a donor, Sue is an active ALS advocate, motivated fundraiser, and enthusiastic event volunteer. Sue’s vision and leadership are deeply appreciated, and like so many volunteers who are inspired to take action, our progress in support of the ALS community is powered by their passion.

“I feel I have the responsibility to educate the community. Every single person I meet, I talk about ALS and I encourage anyone that I see or I talk to help us find a cure. The ALS Network has this wealth of a community that is with you every step of the way. That is something that is invaluable.”

-Karen Sutton

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Educating Our ALS Community

2024 04 Volunteer Month ASK ME Volunteers

Our ASK ME educational webinar series is an opportunity for the ALS community to learn more about important topics related to ALS research, care, and advocacy. This series has been accessed thousands of times through live broadcasts and on-demand via our social media channels. The ALS Network is grateful to the many guest speakers who share their time and expertise to help others learn more about ALS-related subject matters.

We invite you to join us on Zoom for ASK ME: Home Accessibility and Modification on Tuesday, April 23 at 5:00 PM PDT / 2:00 PM HST. We will be joined by Alisa Brownlee, ATP, CLIPP, CAPS, WSP, Assistive Technology and Home Modification Specialist at ALS United Mid-Atlantic. Alisa is also the founder of ALS AT Home, offering virtual home assessments for modifications and safety to those diagnosed with ALS and other progressive diseases.

The Power of Youth Leadership in Action: Student-led Jim Tracy 5K, Walk & Roll to Cure ALS Committee

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The ALS Network proudly celebrates a decade of progress at the 10th annual Jim Tracy 5K, Walk & Roll to Cure ALS on Sunday, April 28, at Golden Gate Park in San Francisco. Participants are invited to join other members of the ALS community for a family-friendly morning of celebration, exercise, education, awareness, music, food, and kids’ fun.

We are grateful for the decade of collaboration with volunteers from San Francisco University High School and their student-led committee, whose vital support in loving memory of coach Jim Tracy helps to power the ALS Network’s unwavering efforts related to ALS care, cures, and community.

Giving Their Time and Talents: Honoring Our Event Founders and Volunteers

The ALS Network could not do what we do without our dedicated volunteer committee members, some of whom are founders of our community outreach events. We appreciate their ongoing support to help fuel our mission. Learn more about why they spearheaded the launch of these events and continue to volunteer year after year.

2024 Volunteer Month Dawn Foley

“I will continue to fight ALS until we have a cure. Niall and I knew that we could make a difference. This is a great event, with something for everyone. Please come out to support those living with ALS and in memory of those we have lost to ALS.”

- Dawn Foley, Co-Founder
SoCal Ride & Rally to Cure ALS

The Central Coast was a natural setting for the Mike Kennedy Surf Club to take root. My brother, Mike, Cal Poly Alum and huge bike rider, passed away from ALS in 2013, we were looking for a way to raise money in support of ALS families, and found the Napa Ride. When the pandemic hit, we moved to the Central Coast, and decided to create a Ride here. We are excited to see this ride take off as we honor my brother and support all those battling this disease.” 

- Katey Kennedy, Founder
Central Coast Ride & Rally to Cure ALS

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2024 04 Volunteer Appreciation Month Bonnie And Peter

“ALS took my mother, Dottie, in 2001. My partner, Peter, and I created a team for their Walk called “Dottie's Guys & Dolls” in her memory and we wanted to do more. Our shared passion to help others facing this disease, combined with our 16 years of experience directing cycling events for another charitable organization, became the genesis for the Napa Valley Ride.”

- Bonnie Pybus and Peter Franklin
Co-Founders,
Napa Valley Ride, Walk & Roll to Cure ALS