Public Policy Priorities

Our advocacy work focuses on educating and mobilizing members of Congress and the Administration in a nonpartisan way to achieve our mission of discovering new treatments and cures for ALS, and serving, advocating for and empowering people living with ALS to live their lives to the fullest.

Capitol

The ALS Network actively advocates for legislative priorities that will help to:

Find New Treatments and Cures

Improve Access to Care and Benefits

Identify Prevention Strategies

Advocacy News

2024 IMPORTANT UPDATE Article Header (1)

ALS organizations collaborate, advocate for FY25 Congressional funding

Infeld Family

Awareness and Advocacy Reunites an ALS Family

Ady Barkan sings "This Land Is Your Land" in the rotunda of the Russell Senate Office Building with his son Carl, wife Rachael and friends. Photo by Jia-Ching Chen.

Celebrating the Life and Legacy of Health Care Activist Ady Barkan

Find New Treatments and Cures:

Improve Access to Care and Benefits

Identify Prevention Strategies

Start Advocating Today

We need your voice to help bring change and hope for people living with ALS.