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A former ALS Network board chair, John Krave passed away on March 25, 2025, following a prolonged battle with pancreatic cancer. He was integral to the growth and evolution of our organization, serving in a volunteer leadership role since the early 2000s. John generously shared his time and talents as a steadfast supporter of the…
Growing up in the small but mighty town of Strathmore, CA, Sarah was one of three children raised by loving parents who taught her resilience and strength. In August 2012, after experiencing what initially seemed like a minor weakness in his arm, Sarah’s father, Robert Arellano, was diagnosed with ALS. The news transformed their family’s…
People living in California can help fund amyotrophic lateral sclerosis (ALS) research when filing their state taxes. The California ALS Research Network Voluntary Tax Contribution Fund allows Californians to contribute to research projects selected by the ALS Network’s scientific advisory committee. At least $250,000 must be raised annually for the program to remain on the…
The ALS Network, in partnership with ALS United, proudly announces that letters of intent for ALS research funding will be accepted April 15 – May 15, 2025. “We are honored to launch a public request for letters of intent as part of our rapidly expanding ALS Research Innovation Initiative,” said Sheri Strahl, MPH, MBA, president…
On Thursday, March 27, the ALS Network hosted an engaging Lunch and Learn session with our Policy and Advocacy Manager, Allison Nadeau, MPH, MBA. Attendees gained an inside look at the Network’s advocacy efforts, as well as valuable tools and knowledge to help drive meaningful change for the ALS community. The session covered: The program…
Process to turn skin cells into motor neurons detailed in 2 papers Scientists have developed a novel method to efficiently grow motor neurons from skin cells, which may serve as a platform for creating cell therapies to treat diseases like amyotrophic lateral sclerosis (ALS). The new method was described in two papers — one titled…
Tuesday, March 30 is National Doctors’ Day. Women’s History month is a great opportunity to celebrate women ALS clinicians and scientists. These dedicated individuals work tirelessly for people living with ALS and their families, while advancing the search for effective treatments and cures for ALS. They are also leaders, teachers, and mentors – training the…
Erin Taylor was born in Whittier, California, in 1999. When she was 17, she moved to Salt Lake City, Utah, to attend college. Always creative and hard working, she juggled numerous jobs while she was in college. After earning her degree in Botany Sciences, she began her career as a field technician in the remote…
Thursday, March 27 at 1 p.m. PT/ 10 a.m. HT – Hosted by our partner, Mitsubishi Tanabe Pharma America, this webinar highlights the importance of building a strong support system to aid in navigating the ALS journey. ALS Network board member David Buseck and his wife, Linda Levine, will share insights and strategies they’ve used…
JERSEY CITY, N.J. March 12, 2025 – Mitsubishi Tanabe Pharma America, Inc. (MTPA) today announced the presentation of eleven abstracts covering research in amyotrophic lateral sclerosis (ALS) at the 2025 Muscular Dystrophy Association (MDA) Clinical and Scientific Conference being held in Dallas, Texas, March 16-19. “We are looking forward to presenting our latest ALS research,…