Calendar of Activities and Events
There is always something going on at the ALS Network. Please check out our calendar to see what is happening this month and to save the date for future activities and events. From our monthly connection groups to our community outreach events, there are many opportunities for you and your family to connect with us. Select subscribe to have these be a part of your personal calendar as well!

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Calendar of Events
S Sun
M Mon
T Tue
W Wed
T Thu
F Fri
S Sat
1 event,
2025 Running Bitcoin Challenge
This is THE EVENT that combines Hal Finney's love of running and Bitcoin and is raising funds and awareness to help cure ALS, which claimed his life. You are challenged…
2 events,
Veterans with ALS: Connect, Support, Chat
Veterans with ALS: Connect, Support, Chat
This quarterly group will support U.S. Veterans, their family, friends and/or caregivers touched by ALS. The focus is keeping individuals connected with their local VA/PVA and educating on all benefits…
3 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
*IN-PERSON* Ventura/Santa Barbara: Connect, Support, Chat
*IN-PERSON* Ventura/Santa Barbara: Connect, Support, Chat
Join us for Ventura/Santa Barbara: Connect, Support, Chat in person at Conejo Recreation and Park District - Hillcrest Center for the Arts at 403 W. Hillcrest Drive, Thousand Oaks, CA…
1 event,
1 event,
1 event,
0 events,
0 events,
0 events,
1 event,
Loved Ones Group: Connect, Support, Chat
Loved Ones Group: Connect, Support, Chat
Facilitator: Kim Venezia, LMFT 510-569-3631 or kvenezia@alsnetwork.org Contact Kim for information on joining the group via Zoom!
1 event,
Adaptive Yoga/Assisted Movement and Guided Meditation
Adaptive Yoga/Assisted Movement and Guided Meditation
1st Wednesday each month, 11:30am-12:30pm PT via Zoom. Adaptive Yoga for ALS is a fully seated or reclining practice, using a loved one or partner, to enjoy guided meditation, assisted…
0 events,
0 events,
0 events,
0 events,
0 events,
2 events,
Community: Connect, Support, Chat
Community: Connect, Support, Chat
Community: Connect, Support, Chat Contact facilitator for information on how to participate via Zoom! Facilitator: Kim C. Venezia, LMFT, 510-569-3631 or kvenezia@alsnetwork.org
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat
San Fernando Valley: Connect, Support, Chat Contact facilitator Emma Karavardanyan, M.A. for information on how to participate via Zoom! 747-282-8177 or ekaravardanyan@alsnetwork.org
3 events,
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat
Turlock/Central Valley: Connect, Support, Chat Please contact facilitator, Kathleen Kelsey, for information on how to join via Zoom! Kathleen Kelsey, RCP: kkelsey@alsnetwork.org; 818-292-4315
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat
NorCal Loved Ones: Connect, Support, Chat Please Contact Facilitator: Sara Holiday at sholiday@alsnetwork.org or (707) 727-5151 for details on how to participate!
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat
For Caregivers of ALS Clients Affected by FTD: Connect, Support, Chat Please contact the Director of Care Services, Jennifer Claxton for information on how to participate via Zoom! Facilitator: Jennifer…
2 events,
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat
Trach and Vent: Connect, Support, Chat Contact Facilitators: Robin Eller, RCP: 661-364-1913 or reller@alsnetwork.org or Kathleen Kelsey, RCP: (818) 292-4315 or kkelsey@alsnetwork.org for more information about how to participate via…
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat
Ventura County Caregiver: Connect, Support, Chat Contact Emma for information on how to join virtually using Zoom! Facilitator: Emma Karavardanyan, M.A 747-282-8177 or ekaravardanyan@alsnetwork.org
0 events,
3 events,
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat
San Luis Obispo: Connect, Support, Chat Please contact facilitator Julie Scurich for information on how to participate via Zoom! Julie Scurich, OTR/L. ATP: 831-247-9878; jscurich@alsnetwork.org
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat
Walnut Creek/East Bay: Connect, Support, Chat Contact Facilitator Margie Petrakis, RRT, RN, for information on how to participate: mpetrakis@alsnetwork.org
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat
Glendale: Connect, Support, Chat Please contact Regional Care Manager Cynthia Marks, RT for information on how to participate using Zoom! cmarks@alsnetwork.org or 909-736-5677
0 events,
0 events,
4 events,
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat
Bereavement (am): Connect, Support, Chat An additional time slot has been added for our monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group…
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+
Connect, Support, Chat: LGBTQ+ All LGBTQ+ people living with ALS and their family, friends, loved ones and allies are welcome to attend this meeting. Some meetings will be general discussion…
Connect, Support, Chat: Bereavement (pm)
Connect, Support, Chat: Bereavement (pm)
Connect, Support, Chat: Bereavement (pm) A monthly meeting for anyone grieving the loss of a loved one to ALS. Contact Support Group Facilitator Daniel Potapshyn, MA at 707-861-0257 or dpotapshyn@alsnetwork.org…
2 events,
*TIME CHANGE* NorCal ALS Community: Connect, Support, Chat
*TIME CHANGE* NorCal ALS Community: Connect, Support, Chat
NorCal ALS Community: Connect, Support, Chat will meet at 3:00 PM PST/1:00 PM HST instead of 1:00 PM PST/11:00 AM HST this month and going forward. Please Contact Facilitator: Sara…
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat
Español: Conéctese, Apoyar, Unase/Spanish Language: Connect, Support, Chat Por favor, comuníquese con Debbie Joy para obtener instrucciones. Please contact facilitator Debbie Joy, MHA for information on how to join using…
0 events,
2 events,
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat
All-Hawaii: Connect, Support, Chat Connect, Support, Chat: All-Hawaii Please contact the Director of Care Services, Jennifer Claxton for information on how to participate via Zoom! Facilitator: Jennifer Claxton, jclaxton@alsnetwork.org or…
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat
South Los Angeles: Connect, Support, Chat Contact Brandon for information on how to participate via Zoom! Facilitator: Brandon Whatley, B.S., OTA 818-699-2280 or bwhatley@alsnetwork.org
1 event,
*IN-PERSON* Monterey Bay: Connect, Support, Chat
*IN-PERSON* Monterey Bay: Connect, Support, Chat
Monterey Bay: Connect, Support, Chat will meet in-person this month at Watsonville Community Hospital. Please contact facilitator Julie Scurich for information. Facilitator: Julie Scurich, OTR/L, ATP: (831) 247-9878; jscurich@alsnetwork.org
0 events,
0 events,
3 events,
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat
Palo Alto: Connect, Support, Chat Contact Shannan for information on how to join virtually using Zoom! Facilitator: Shannan Sonnicksen, LCSW, MPH 510-342-9313, ssonnicksen@alsnetwork.org
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat
Ventura/Santa Barbara: Connect, Support, Chat meets online every fourth Tuesday of the month at 4:00 PM PT. The group will meet in person quarterly at Hillcrest Center for the Arts in…
ASK ME: ALS Research and Care in 2025
ASK ME: ALS Research and Care in 2025
Please join us virtually on Tuesday, February 25 for ASK ME: ALS Research and Care in 2025 at 5:00pm PST / 3:00pm HST. This event will feature leading ALS researchers…
0 events,
1 event,
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat
Pomona: Connect, Support, Chat Call Roshandra for information on how to participate using Zoom! Facilitator: Roshandra Edwards M. Ed. 213-898-3388, redwards@alsnetwork.org
1 event,
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat
San Francisco and Surrounding Counties: Connect, Support, Chat 1:00-3:00 PM Fourth Friday of each month For information on how to participate via Zoom, contact Facilitator: Trung Ton, BA Kin, 510-753-0395;…