May is ALS Awareness Month! Join us in raising awareness about this devastating disease as we work to cure ALS.

The ALS Network – Your connection to care, research, and advocacy.

We connect need with support, questions with answers, thought leaders with new ideas, research to funding, and advocates to challenge the status quo.

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Our team of professional Care Managers provide expert advice and assistance for people with ALS, free of charge.


We invest in research that will lead to better treatments and cures. We can also help connect you to clinical trials.

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Our advocacy efforts advance important public policy initiatives that benefit our ALS community.

Support Our Mission

To partner with the ALS community as we drive the discovery of prevention strategies, treatments, and cures for ALS; provide access to quality care and connection; and promote initiatives to improve health outcomes.

Connect, Support, Chat

Connection groups are a great place for people living with ALS and their loved ones to share their personal experiences and learn more about strategies for preserving independence and maximizing quality of life.

Margie Petrakis 2016 CV Walk
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ASK ME: Recap of the Packard Center Annual ALS Research Symposium

We invite you to join us on Zoom for ASK ME: Recap of the Packard Center Annual ALS Research Symposium on Thursday, May 30 at 5:00 PM PDT/2:00 PM HST. We will be joined by Dr. Christine Vande Velde, who is the Professor in the Department of Neurosciences at the Université de Montréal and Université de Montréal Hospital Research Center (CRCHUM) and the Scientific Director of the Robert Packard Center for ALS Research at Johns Hopkins.

ASK ME: Home Accessibility and Modification

Please watch our ASK ME educational webinar, "Home Accessibility and Modification” with Alisa Brownlee, ATP, CLIPP, CAPS, WSP, Assistive Technology and Home Modification Specialist at ALS United Mid-Atlantic. Alisa is also the founder of ALS AT Home, offering virtual home assessments for modifications and safety to those diagnosed with ALS and other progressive diseases.

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News & Stories

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Hawaii Governor Proclaims May as ALS Awareness Month

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My ALS Story: Sam, ALS Caregiver

2024 May ENewsletter

May 2024 | Monthly eNewsletter from ALS Network

Stay up-to-date on ALS care, research, and advocacy, as well as upcoming activities and events, and learn more about the many ways ALS Network is helping the ALS community.