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Hawaii Governor Proclaims May as ALS Awareness Month

May 16, 2024 Comments Off on Hawaii Governor Proclaims May as ALS Awareness Month

The ALS Network is grateful to our ohana on the islands for their continuing efforts to raise ALS awareness throughout ALS Awareness Month. Our ALS families on the island gathered together throughout the month of May to make a difference in our ALS community. On May 16, 2024, the ALS Network, ALS Foundation of Hawaii,…

My ALS Story: Sam, ALS Caregiver

May 11, 2024 Comments Off on My ALS Story: Sam, ALS Caregiver

Since my wife, Sharalyn, was diagnosed with ALS in August of 2020, we have faced many challenges but found support through the ALS Network (formerly the ALS Association Golden West Chapter). It was extremely helpful to have someone like our care manager, Cindy, who was dependable and always available for us. Every time we attended…

May 2024 | Monthly eNewsletter from ALS Network

May 3, 2024 Comments Off on May 2024 | Monthly eNewsletter from ALS Network

Our May eNewsletter is in your inbox now or you can view it online! This month, we celebrate #ALS Awareness Month! Learn more about the ways that you can show your support and take action. Explore compelling and diverse stories from #ourALScommunity and key facts about ALS. Please proudly share your commitment to our mission…

Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

May 3, 2024 Comments Off on Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

The former N.F.L. player has been living with A.L.S. for more than a decade. Sharing “the most lacerating and vulnerable times” in “A Life Impossible” was worth the physical and emotional toll, he says. Describe your ideal reading experience (when, where, what, how). “I have always loved to read, and I read nearly anywhere. Journalists…

Volunteer Leader David Buseck Pens Travel Book

May 3, 2024 Comments Off on Volunteer Leader David Buseck Pens Travel Book

Paris: City of Cultures is your guide to see Paris beyond the Eiffel Tower.  Authored by David Buseck, ALS Network board member and person living with ALS, the book features eight walking/wheelchair tours, complete with maps and step-by-step directions. Each route is designed around a cultural community that has thrived in the area being visited.…

2024 National Advocacy Event – Participate Virtually

May 2, 2024 Comments Off on 2024 National Advocacy Event – Participate Virtually

Join the ALS Network for I AM ALS’s inaugural Community Summit and third annual DC ALS Awareness Event. While in-person attendance options are now fully booked, you can still participate virtually from Wednesday, May 29 through Friday, May 31. Registration for the event may be completed HERE.  The virtual event will provide an opportunity for…

Denali Therapeutics Announces Completion of Enrollment for Regimen G Evaluating eIF2B Agonist DNL343 in the Phase 2/3 HEALEY ALS Platform Trial

May 1, 2024 Comments Off on Denali Therapeutics Announces Completion of Enrollment for Regimen G Evaluating eIF2B Agonist DNL343 in the Phase 2/3 HEALEY ALS Platform Trial

SOUTH SAN FRANCISCO, Calif., May 01, 2024 (GLOBE NEWSWIRE) — Denali Therapeutics Inc. (Nasdaq: DNLI), a biopharmaceutical company developing a broad portfolio of product candidates engineered to cross the blood-brain barrier (BBB) for the treatment of neurodegenerative and lysosomal storage diseases, today announced that the Sean M. Healey & AMG Center in collaboration with the…

Studio City Life Magazine: Charity Spotlight

May 1, 2024 Comments Off on Studio City Life Magazine: Charity Spotlight

The May 2024 issue of Studio City Life Magazine featured ALS Network president and CEO Sheri Strahl, along with ALS Network Advisory Trustee Dr. Richard Smith. Readers received details on ALS Network care services and a moonshot approach to funding promising research.

A Note From Our President and CEO, Sheri Strahl

April 29, 2024 Comments Off on A Note From Our President and CEO, Sheri Strahl

Dear Friends, February 1, 2024 marked a significant milestone as I began my tenure as President and CEO of the ALS Network, formerly the ALS Association Golden West Chapter. I am both humbled and invigorated to lead this organization at a dynamic time of impact and change, with laser-focus on our mission-critical activities associated with…

NBC Bay Area: 10th Annual Jim Tracy 5K in Golden Gate Park

April 28, 2024 Comments Off on NBC Bay Area: 10th Annual Jim Tracy 5K in Golden Gate Park

Watch this segment with Terry McSweeney from NBC Bay Area talk about the 10th Annual Jim Tracy 5K, Walk & Roll to Cure ALS in Golden Gate Park.