Month: August 2025
Here’s what’s happening in Washington, D.C., and how you can help safeguard ALS programs and research. Updates Earlier this summer, the President signed H.R. 1 — the “One Big Beautiful…
Dear Friends, I am grateful for your steadfast support of the ALS Network and invite you to read our new Impact Report. We are excited to share how your partnership powers our mission-critical…
When Sheri Strahl became the first President and CEO of the newly named ALS Network in 2024, she stepped into a role already brimming with urgency, and opportunity. Armed with dual public…
NBC Bay Area is proud to support the ALS community as the 21st Annual Napa Valley Ride, Walk & Roll to Cure ALS returns on Saturday, September 27, 2025 — this time at its exciting…
On July 4, 2025, the budget reconciliation bill, H.R.1, was signed into law. The legislation includes changes to Medicaid, Medicare, and the Affordable Care Act (ACA), putting at risk the…
Researchers at Yale School of Medicine said they’ve solved a longstanding mystery of how mutations in the C9ORF72 gene, a common genetic cause of amyotrophic lateral sclerosis (ALS), may lead to toxic proteins. The findings…
Research seeks to advance discovery and development of treatments for ALS 8/21/25 – FOR IMMEDIATE RELEASE LOS ANGELES – The ALS Network, formerly ALS Golden West, has partnered with Target…
A wearable robot that detects small arm motions and helps support the shoulder can make it easier for amyotrophic lateral sclerosis (ALS) patients to pick up and carry things, a study showed.…
The ALS Network is driven by passion — for people, for progress, and for a future without ALS. We partner with world-class researchers, clinicians, and institutions across California and Hawaii…
In the beginning, not even Hynek Wichterle’s postdoc thought his idea to slow the progression of ALS had a chance. “When Hynek proposed this, I thought it would never work…