Month: May 2025
The ALS Network presented four researchers with the Barber Research Award during the UC ALS Reinvigorating Innovation in ALS Research workshop on May 15-16. From left to right: Julie Smeyers,…
In response to federal research funding cuts, Marc Weisskopf, a professor in the Environmental Health Department at Harvard’s T.H. Chan School of Public Health, states, “It poses a tremendous threat…
Left to Right: Sheri Strahl, MPH, MBA, President and CEO, ALS Network; Christopher J. McDermott, MBChB, FRCP, PhD, University of Sheffield; Neil A. Shneider, MD, PhD, Columbia University; Jim Essey,…
A groundbreaking experimental therapy for a rare, aggressive form of ALS caused by FUS gene mutations has produced surprising clinical improvements in some patients, including restored mobility and extended survival.…
In honor of May as ALS Awareness Month, the ALS community collaborated with various local government representatives in Hawaii and California to raise awareness. ALS Awareness Month in Hawaii On…
MaaT033, an oral therapy aiming to restore balance to the collection of bacteria and other microbes in the gut, was safe and well tolerated after three months and showed signs…
Researchers to Analyze Medication Effects on Development and Progression of ALS and Parkinson’s Diseases LOS ANGELES – The ALS Network, formerly ALS Golden West, in partnership with the ALS CURE…
This week, several ALS organizations came together in Washington, D.C. to expedite solutions to advance the fight against ALS in the current policy environment. We have committed to leverage our…
Our May eNewsletter is in your inbox now, or you can view it online! This month, we celebrate ALS Awareness Month and highlight the power of community! Please check our…
Meet our ALS community’s incredible individuals, including our steadfast volunteers, researchers, advocates. Meet Laura Miller, Living with ALS Meet Laura Miller, team captain of Team Miller Time and person who…