Month: April 2025

ALS News Today: Brain-computer Interface to Restore Speech Named Award Winner

April 28, 2025 Comments Off on ALS News Today: Brain-computer Interface to Restore Speech Named Award Winner

A neurosurgeon and his team from the University of California (UC) Davis Health have won The Herbert Pardes Clinical Research Excellence Award — given by the nonprofit Clinical Research Forum — for…

AP News: Chicago Bears Great Steve McMichael Dies at 67 After Battle with ALS

April 23, 2025 Comments Off on AP News: Chicago Bears Great Steve McMichael Dies at 67 After Battle with ALS

CHICAGO (AP) — With his massive frame and larger-than-life persona, Steve McMichael was natural for the gridiron and the squared circle. The man known as “Mongo” and “Ming The Merciless”…

The ALS Network Honors the Life and Legacy of John Krave

April 21, 2025 Comments Off on The ALS Network Honors the Life and Legacy of John Krave

A former ALS Network board chair, John Krave passed away on March 25, 2025, following a prolonged battle with pancreatic cancer. He was integral to the growth and evolution of…

ALS News Today: First Patient Dosed in a Phase 1 Study Testing AMX0114 in ALS

April 21, 2025 Comments Off on ALS News Today: First Patient Dosed in a Phase 1 Study Testing AMX0114 in ALS

The first patient has been dosed in a Phase 1 clinical study testing AMX0114, an experimental therapy being developed by Almylyx Pharmaceuticals for amyotrophic lateral sclerosis (ALS). The treatment targets calpain-2, a protein believed to…

Spotlight on… Sarah Marez

April 18, 2025 Comments Off on Spotlight on… Sarah Marez

Growing up in the small but mighty town of Strathmore, CA, Sarah was one of three children raised by loving parents who taught her resilience and strength. In August 2012,…

Sports Illustrated: Heartfelt Tributes Pour in Following Death of Surf Icon Greg Browning

April 15, 2025 Comments Off on Sports Illustrated: Heartfelt Tributes Pour in Following Death of Surf Icon Greg Browning

The surfing community lost a great one recently—Greg Browning, a well-loved surfer and filmmaker who positively impacted the lives of many. In 2023, Browning was diagnosed with the heart-wrenching amyotrophic lateral sclerosis…

People: Eric Dane Announces He Has Been Diagnosed with ALS

April 10, 2025 Comments Off on People: Eric Dane Announces He Has Been Diagnosed with ALS

Eric Dane has amyotrophic lateral sclerosis (ALS), he tells PEOPLE exclusively. “I have been diagnosed with ALS,” he shares. “I am grateful to have my loving family by my side as we navigate…

ALS News Today: MDA 2025: INS1202 Gene Therapy Shows Promise In SOD1-ALS Mice

April 1, 2025 Comments Off on ALS News Today: MDA 2025: INS1202 Gene Therapy Shows Promise In SOD1-ALS Mice

A single dose of Insmed’s investigational gene therapy INS1202 preserved motor function and prolonged survival in a mouse model of amyotrophic lateral sclerosis (ALS) associated with SOD1 gene mutations. The therapy was also found to…