Month: February 2025
AP News: Roberta Flack, Grammy-winning ‘Killing Me Softly’ singer with an intimate style, dies at 88
Roberta Flack, the Grammy-winning singer and pianist whose intimate vocal and musical style made her one of the top recordings artists of the 1970s and an influential performer long after,…
(PDF link) The Honorable Matthew J. Memoli, M.D., M.S.Acting DirectorNational Institutes of Health9000 Rockville Pike,Bethesda, Maryland 20892 Re: NOT-OD-25-068: Supplemental Guidance to the 2024 NIH Grants Policy Statement: Indirect Cost…
Ten years after ‘Still Alice’ the film’s co-writer/director tells the story of his ailing partner’s own heartbreaking struggle to survive and see their longshot project through to its glorious end.
Our February eNewsletter is in your inbox now, or you can view it online! As we move into Black History Month, we celebrate and recognize the achievements and contributions of…
February 6, 2025 Following a comprehensive planning process, 15 independent nonprofit organizations from around the country have formalized ALS United, an innovative partnership dedicated to serving the ALS community. This…
Alongside incredible ALS advocates and colleagues, the ALS Network had impactful discussions on public policy priorities for the ALS community at the More Than Our Stories conference – a grassroots…
Recently studies have shown ALS in the United States to be more commonly diagnosed in White males over 60 years of age. Previous epidemiologic studies addressing racial variation in ALS…
ALS affects individuals across all backgrounds, yet representation in ALS research has long been skewed. Data reveals that approximately 95% of participants in previous ALS clinical trial studies were Caucasian,…
The Running Bitcoin Challenge combines Hal Finney’s love of running and Bitcoin to raise funds and awareness to help end ALS, which claimed his life. Since 2021, Hal’s wife, Fran…
The 15th annual ALS Network Research Summit (formerly the California ALS Research Summit) convened more than 200 researchers, investigators, clinicians, biotech companies, government representatives, partner organizations, and advocates in ALS…