2025 National Advocacy Event – Participate In Person or Virtually

Join the ALS Network for the 2025 Community Summit hosted by I AM ALS on May 7-10, 2025 in Washington, D.C. ALS Network is proud to once again sponsor this event, attended by volunteers and staff members who will gather with ALS community advocates to learn from each other, connect, heal, and mobilize. 

You can register here to participate in person or virtually. 

During the event, the ALS Network, I AM ALS, collaborative partners, and community members will come together for meetings on Capitol Hill to push for members to join the ALS Caucus and support the ALS community’s funding and policy priorities.The gathering also includes an installation of 6,000 blue flags honoring those living with ALS, those we have lost to ALS, and those who are ALS gene carriers. After installation, community members join in an opening ceremony to bravely share their ALS stories, while others listen and learn as their entrance to advocacy. You may submit a name here for the 2025 flag installation.