Month: December 2024

Aaron Lazar – a champion in the ALS community

December 30, 2024 Comments Off on Aaron Lazar – a champion in the ALS community

Award-winning actor, singer, speaker, and advocate Aaron Lazar has exemplified a resilience that reminds us of the power we have to make the impossible possible, encouraging us all to “dream…

Grammy Award Winners and Nominees to be Honored by ALS Network on January 17

December 23, 2024 Comments Off on Grammy Award Winners and Nominees to be Honored by ALS Network on January 17

December 23, 2024 SAN FRANCISCO – The ALS Network announces its annual Champions for Cures and Care on Friday, January 17, 2025, at the Hyatt Regency San Francisco. This elegant…

Servicios de Cuidado / Care Services

December 20, 2024 Comments Off on Servicios de Cuidado / Care Services

Cada persona con ELA que se registra con la ALS Network es conectada a servicios de atención personalizados. Vea este video para obtener mas información sobre nuestros programas y servicios.…

TEN NONPROFITS PARTNER TO ACCELERATE URGENT SEARCH TO CURE ALS

December 17, 2024 Comments Off on TEN NONPROFITS PARTNER TO ACCELERATE URGENT SEARCH TO CURE ALS

The ALS Network and ALS United organizations announce national collaboration. December 17, 2024 – FOR IMMEDIATE RELEASE LOS ANGELES – In an unprecedented collaboration, nine ALS organizations have joined with…

Private Medicare required to cover Biogen’s ALS drug by US Agency

December 12, 2024 Comments Off on Private Medicare required to cover Biogen’s ALS drug by US Agency

Private insurers are now required to cover Biogen’s ALS FDA approved drug, Qalsody, by the Centers for Medicare & Medicaid Services (CMS) following reports of coverage denials. Previously, Medicare Advantage…

FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

December 8, 2024 Comments Off on FOX11: LA’s Hailey Winslow on the 2024 Los Angeles Walk & Roll to Cure ALS

Our deepest gratitude to Hailey Winslow, Susan Hirasuna, and FOX 11 news for your thoughtful segment about the 24th annual Los Angeles Walk & Roll to Cure ALS. We cannot…

December 2024 | Monthly eNewsletter from ALS Network

December 6, 2024 Comments Off on December 2024 | Monthly eNewsletter from ALS Network

Our December eNewsletter is in your inbox now, or you can view it online! This month, we celebrate our ALS Network family! Throughout this month, we will showcase members of…

Honoring the Producers of the Impossible Dream Album

December 6, 2024 Comments Off on Honoring the Producers of the Impossible Dream Album

The ALS Network (formerly ALS Golden West) is proud to announce Kitt Wakeley, David Das, and the Producers of the Grammy Award-nominated album, Impossible Dream, as our 2025 Essey Spotlight…

ALS Network Holiday Card Features Artwork of Gayle Garner Roski

December 5, 2024 Comments Off on ALS Network Holiday Card Features Artwork of Gayle Garner Roski

Before her passing from ALS in 2020, Gayle Garner Roski described watercolor as a “medium of magic.”  Gayle once explained she loved “watercolors because they have a way of being…

Help Shape ALS Network’s 2025 Advocacy Priorities

December 5, 2024 Comments Off on Help Shape ALS Network’s 2025 Advocacy Priorities

At the ALS Network, we deeply value the voices of people living with ALS, their caregivers, and others who have been impacted by this disease. Your experiences and insights are…