Month: September 2024

ALS Network joins the celebration of Broadway actor and Essey award winner Aaron Lazar’s debut album ‘Impossible Dream’

September 30, 2024 Comments Off on ALS Network joins the celebration of Broadway actor and Essey award winner Aaron Lazar’s debut album ‘Impossible Dream’

The ALS Network joined in celebrating Impossible Dream, the debut album of Broadway actor and Essey award winner, Aaron Lazar in Hollywood on Sept. 29.  This festivities come a few…

Governor Gavin Newsom Signs California Law Establishing the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC)

September 30, 2024 Comments Off on Governor Gavin Newsom Signs California Law Establishing the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC)

The ALS Network commends Governor Gavin Newsom for signing AB 2613 into law. This bill establishes the Jacqueline Marie Zbur Rare Disease Advisory Council (RDAC), making California the 29th state…

ALS Community celebrated the 20th Annual Napa Valley Ride, Walk & Roll to Cure ALS

September 28, 2024 Comments Off on ALS Community celebrated the 20th Annual Napa Valley Ride, Walk & Roll to Cure ALS

The ALS Network proudly celebrated the 20th annual Napa Valley Ride, Walk & Roll to Cure ALS® on Saturday, September 14, at Justin-Siena High School, in Napa, CA. This annual…

Kate Linder talks about two causes close to her heart

September 26, 2024 Comments Off on Kate Linder talks about two causes close to her heart

“The Young and the Restless” star Kate Linder talks about her career and charity walks benefiting the Lupus Foundation of America and the ALS Network. Linder is a celebrity ambassador…

Press Democrat: Photos: Napa Valley Ride, Walk & Roll to Cure ALS at Justin-Siena High School

September 15, 2024 Comments Off on Press Democrat: Photos: Napa Valley Ride, Walk & Roll to Cure ALS at Justin-Siena High School

The ALS Network thanks  the Press Democrat for attending the 20th annual Napa Valley Ride, Walk & Roll to Cure ALS and for featuring some of the fun from the…

In Loving Memory of Fred Fisher

September 12, 2024 Comments Off on In Loving Memory of Fred Fisher

The ALS Network, formerly ALS Golden West, honors the life and legacy of Fred Fisher, MSW, LCSW, president emeritus of the ALS Network. Fred died on September 10, 2024 following…

ALS Network Announces $100,000 Research Grant Awarded To Amprion, Inc.

September 12, 2024 Comments Off on ALS Network Announces $100,000 Research Grant Awarded To Amprion, Inc.

Diagnostics company to accelerate search for sporadic ALS therapies September 12, 2024 – FOR IMMEDIATE RELEASE LOS ANGELES – The ALS Network, formerly ALS Golden West, has awarded a $100,000…

Press Democrat: Hundreds in Napa set to ride for ALS research and celebrate 20 years of advocacy

September 11, 2024 Comments Off on Press Democrat: Hundreds in Napa set to ride for ALS research and celebrate 20 years of advocacy

Howard Mattfield first noticed it when playing golf. Something was up with his left hand. He thought surely it must be something like trigger finger. So he made an appointment…

KSEE/KGPE: ‘Can’t say enough’: How annual Clovis ALS event brings hope to community

September 10, 2024 Comments Off on KSEE/KGPE: ‘Can’t say enough’: How annual Clovis ALS event brings hope to community

CLOVIS, Calif. (KSEE/KGPE) – A tight-knit community came together at the Clovis Rodeo grounds on Sunday, September 8, 2024 to bring awareness and support for those with ALS at the…

Golfers Gather in support of the ALS Community

September 9, 2024 Comments Off on Golfers Gather in support of the ALS Community

The 2024 annual Petersen International Underwriters ALS Golf Classic was held on September 9 at The Oaks Club in Valencia.  Honorary Chair, Thomas Petersen of Petersen International Underwriters, along with…