Month: August 2024

The ALS Network, Denali Therapeutics, and Cytokinetics Inc. Celebrate the 3rd Splash to Cure ALS

August 14, 2024 Comments Off on The ALS Network, Denali Therapeutics, and Cytokinetics Inc. Celebrate the 3rd Splash to Cure ALS

The ALS Network partnered with biotech leaders Denali Therapeutics and Cytokinetics, Inc. for the 3rd South San Francisco (SSF) Splash to Cure ALS on Wednesday, August 14, in support of…

NY TIMES: ALS Stole His Voice. A.I. Retrieved It.

August 14, 2024 Comments Off on NY TIMES: ALS Stole His Voice. A.I. Retrieved It.

Casey Harrell, who has A.L.S., received surgically implanted electrodes last July that help connect his brain to a computer allowing him to speak with the assistance of an A.I.-powered computer…

The ALS Network Celebrates the 10th Anniversary of the ALS Ice Bucket Challenge

August 8, 2024 Comments Off on The ALS Network Celebrates the 10th Anniversary of the ALS Ice Bucket Challenge

A decade of impact, inspiring people to boldly advance the discovery of prevention strategies, treatments, and cures. Ten years ago, a seemingly simple act ignited a global social movement. Inspired…

LiveNOW from FOX features 10th Anniversary of the Ice Bucket Challenge

August 5, 2024 Comments Off on LiveNOW from FOX features 10th Anniversary of the Ice Bucket Challenge

Recently, the ALS Network spoke with Christy Matino at LiveNOW from FOX about the 10th anniversary of the ALS Ice Bucket Challenge and its decade-long impact on thousands affected with…

ESPN pays tribute to Pete Frates, his legacy, and impact of the 2014 ALS Ice Bucket Challenge

August 4, 2024 Comments Off on ESPN pays tribute to Pete Frates, his legacy, and impact of the 2014 ALS Ice Bucket Challenge

The ALS Network is grateful to ESPN for their special feature on Pete Frates, the former Captain of the Boston College baseball team and professional baseball player in Europe. Pete…

August 2024 | Monthly eNewsletter from ALS Network

August 2, 2024 Comments Off on August 2024 | Monthly eNewsletter from ALS Network

Our August eNewsletter is in your inbox now, or you can view it online! This month, we celebrate the 10th Anniversary of the ALS Ice Bucket Challenge, Essey-Award Winner Aaron…

Advocates from the ALS Network present at the 2024 ALS Community Summit

August 2, 2024 Comments Off on Advocates from the ALS Network present at the 2024 ALS Community Summit

From May 29 – June 1, 2024, many ALS advocates  and supporters from the ALS Network and other ALS nonprofit organizations participated in the inaugural ALS Community Summit, hosted by…

The ALS Network Proudly Supports the Bipartisan Healthy Brains Act (HR 9233)

August 1, 2024 Comments Off on The ALS Network Proudly Supports the Bipartisan Healthy Brains Act (HR 9233)

The ALS Network proudly supports the bipartisan Healthy Brains Act (HR 9233), introduced by Reps. Congresswoman Jennifer Wexton  (D-VA) and Congressman Gus Bilirakis (R-FL). This important legislation directs the National…

Aaron Lazar ‘Impossible Dream’ Album Release

August 1, 2024 Comments Off on Aaron Lazar ‘Impossible Dream’ Album Release

Award-winning actor and singer, Aaron Lazar, has announced his debut album, Impossible Dream, is available now for presale and will launch to the public on Friday, August 23! The ALS…

The ALS Network is now a member of ALS United

August 1, 2024 Comments Off on The ALS Network is now a member of ALS United

The ALS Network is proud to be a member of ALS United. This group of 15 nonprofit organizations from across the United States are all at the forefront of the…