Month: July 2024
The ALS Network proudly announces the 3rd annual Central Coast Ride & Rally to Cure ALS on Saturday, August 24, 2024 at Bang the Drum Brewery, in San Luis Obispo.…
Mike Kallhoff, MM, began his tenure as Chief Operating Officer of the ALS Network on July 9. An award-winning nonprofit leader, Mike brings more than 20 years of experience to…
Don’t miss this episode of “Nothing Left Unsaid” featuring award-winning actor and singer Aaron Lazar as he talks about his career, ALS diagnosis, and his debut album “Impossible Dream”. Tim…
In recognition of July as Disability Pride Month, the NIH Chief Officer for Scientific Workforce Diversity, Dr. Marie Bernard, discussed the importance of disability inclusion with Dr. Alison Cernich, Deputy…
The U.S. Food and Drug Administration has announced the establishment of a Rare Disease Innovation Hub. The Hub will connect and engage the rare disease community; help the community navigate…
The ALS Network proudly announces the 2nd annual Big Island Walk & Roll to Cure ALS (formerly the Big Island Walk to Defeat ALS) on Sunday, August 18, 2024 at…
Our July eNewsletter is in your inbox now, or you can view it online! This month, we are inspired by the stories of many individuals in the ALS community, highlight…
Each Fourth of July marks the anniversary of New York Yankees legend Lou Gehrig’s official farewell to baseball and public disclosure of his ALS diagnosis. In honor of the 85th…
Before 2011, when his partner of 21 years, John Arthur, was diagnosed with the disease, Jim Obergefell knew very little about ALS. Living in Ohio, they connected with the Central…