Month: May 2024

Biogen and Ionis Announce Topline Phase 1/2 Study Results

May 16, 2024 Comments Off on Biogen and Ionis Announce Topline Phase 1/2 Study Results

CAMBRIDGE, Mass. and CARLSBAD, Calif., May 16, 2024  (GLOBE NEWSWIRE) —  Biogen Inc. and Ionis Pharmaceuticals, Inc. announced the decision to terminate development of BIIB105 (ION541) an investigational antisense oligonucleotide…

Hawaii Governor Proclaims May as ALS Awareness Month

May 16, 2024 Comments Off on Hawaii Governor Proclaims May as ALS Awareness Month

The ALS Network is grateful to our ALS ohana for generating ALS awareness throughout May, ALS Awareness Month.  On May 16, 2024, the ALS Network, ALS Foundation of Hawaii, ALS…

My ALS Story: Sharalyn, Person with ALS

May 14, 2024 Comments Off on My ALS Story: Sharalyn, Person with ALS

The daily struggles with ALS start with just getting dressed. My strength and energy are low. Every time I need a new piece of assistive equipment, I get sad that…

My ALS Story: Sam, ALS Caregiver

May 11, 2024 Comments Off on My ALS Story: Sam, ALS Caregiver

Since my wife, Sharalyn, was diagnosed with ALS in August of 2020, we have faced many challenges but found support through the ALS Network (formerly the ALS Association Golden West…

Advancing Research and Care in Hawaii

May 10, 2024 Comments Off on Advancing Research and Care in Hawaii

A transformative donation of $150 million was made in support of two Hawaiʻi hospitals thanks to Marc Benioff, CEO of Salesforce, and his wife Lynne Benioff. The generous gift is…

Thousand Oaks officially recognizes ALS Awareness Month

May 8, 2024 Comments Off on Thousand Oaks officially recognizes ALS Awareness Month

This month, the City Of Thousand Oaks officially recognized May 2024 as ALS Awareness month during the 2024 SoCal Ride & Rally to Cure ALS in Newbury Park, CA. The…

Outside the grind: Karen Walker

May 7, 2024 Comments Off on Outside the grind: Karen Walker

Outside the Grind is our occasional feature that spotlights the unique passion projects, side hustles, and hobbies of finance professionals outside of the office. Let us know if you know,…

May 2024 | Monthly eNewsletter from ALS Network

May 3, 2024 Comments Off on May 2024 | Monthly eNewsletter from ALS Network

Our May eNewsletter is in your inbox now or you can view it online! This month, we celebrate #ALS Awareness Month! Learn more about the ways that you can show…

Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

May 3, 2024 Comments Off on Letter by Letter, Steve Gleason Typed His Memoir With His Eyes

The former N.F.L. player has been living with A.L.S. for more than a decade. Sharing “the most lacerating and vulnerable times” in “A Life Impossible” was worth the physical and…

Volunteer Leader David Buseck Pens Travel Book

May 3, 2024 Comments Off on Volunteer Leader David Buseck Pens Travel Book

Paris: City of Cultures is your guide to see Paris beyond the Eiffel Tower.  Authored by David Buseck, ALS Network board member and person living with ALS, the book features…