Month: April 2024

April 2024 | Monthly eNewsletter from ALS Network

April 5, 2024 Comments Off on April 2024 | Monthly eNewsletter from ALS Network

Our April eNewsletter is in your inbox now or you can view it online! This month, we celebrate #VolunteerAppreciationMonth and all who generously give their time and talents in support…

Celebrating 10 years of impact

April 5, 2024 Comments Off on Celebrating 10 years of impact

“In my mind is, everyday, to get something done, because I don’t know where that finish line is but I’m moving towards it, slowly but surely.” – Jim Tracy  The…

Educating Our ALS Community

April 5, 2024 Comments Off on Educating Our ALS Community

Our ASK ME educational webinar series is an opportunity for the ALS community to learn more about important topics related to ALS research, care, and advocacy. This series has been…

New ALS Research and Moonshot Era

April 4, 2024 Comments Off on New ALS Research and Moonshot Era

A trailblazer in the field of ALS research and therapy development, Richard Smith, MD, director of the Center for Neurologic Study, and a member of the ALS Network’s scientific review…

ALS Network Statement – Discontinuation of Relyvrio

April 4, 2024 Comments Off on ALS Network Statement – Discontinuation of Relyvrio

Amylyx has announced the discontinuation of Relyvrio due to the PHOENIX trial’s failure to meet primary and secondary endpoints. They will present their learnings from the trial at upcoming meetings…

Giving the Gift of Themselves: 2024 ALS Network Board of Directors and Advisory Trustees

April 1, 2024 Comments Off on Giving the Gift of Themselves: 2024 ALS Network Board of Directors and Advisory Trustees

The ALS Network is grateful to those who generously share their significant gifts of time, expertise, leadership, compassion, and funding in support of the ALS community. The ALS Network’s volunteer…

Giving Their Time and Talents: Honoring Our Event Volunteers

April 1, 2024 Comments Off on Giving Their Time and Talents: Honoring Our Event Volunteers

The ALS Network could not do what we do without our dedicated volunteer committee members, some of whom are founders of our community outreach events. We appreciate their ongoing support…