Month: September 2023
On Wednesday, September 27, the Federal Drug Administration hosted a public Advisory Committee (AdCom) to review the approval of NurOwn (Debamestrocel) for the treatment of ALS. Developed by Brainstorm Cell…
Patient advocacy organizations have long been influential in the drug development landscape. Most recently, they have played a larger role in the regulatory space, and advisory committee meetings are a…
Luis Borba was admired by many and was often referred to as “Uncle Louie,” from many family and friends. Luis developed a life in the Central Valley, and worked on…
ALS Golden West hosted the 2nd annual Central Coast Ride and Rally to Defeat ALS on Saturday, September 16, 2023 at Bang the Drum Brewery in San Luis Obispo. The…
Our September eNewsletter is in your inbox now or you can view it online! This month, we are highlighting Hawaii’s ALS community, the Hawaii Walk to Defeat ALS, and the…
Our deepest gratitude to Golden West supporter Tom Horton, who participated in his 17th Catalina Classic Paddleboard Race to Defeat ALS on August 27, 2023. The annual Catalina Classic Paddleboard…
At the annual National ALS Registry Research Symposium, hosted by the Centers for Disease Control and Prevention (CDC), there was a special presentation on mapping to better understand the registry’s…
The viral ALS Ice Bucket Challenge a few years ago raised major funding that resulted in the discovery of new genes connected to the disease. One of those genes is…
On Wednesday, September 27, 2023, the FDA will host a public advisory committee meeting (AdComm) for BrainStorm Cell Therapeutics’ stem cell therapy NurOwn for the treatment of ALS. The public…
In 2020, Elizabeth Sy was diagnosed with ALS. After learning more about the disease, the Sy family connected with ALS Golden West for services and support. The Sy family also…