Month: July 2023

Mitsubishi Tanabe Pharma America Announces Update on Global, Phase 3b MT-1186-A02 Postmarketing Study of Oral Edaravone in ALS

July 31, 2023 Comments Off on Mitsubishi Tanabe Pharma America Announces Update on Global, Phase 3b MT-1186-A02 Postmarketing Study of Oral Edaravone in ALS

Independent data monitoring committee advises conclusion of study evaluating once-daily dosing of oral edaravone following interim futility analysis JERSEY CITY, N.J. July 31, 2023 – Mitsubishi Tanabe Pharma America, Inc.…

July 2023 | Monthly eNewsletter from the Golden West Chapter

July 20, 2023 Comments Off on July 2023 | Monthly eNewsletter from the Golden West Chapter

Our July eNewsletter is in your inbox now or you can view it online! This month, we are sharing the inspirational stories of families within the ALS community dedicated to…

Meet Jim Obergefell, ALS Advocate

July 20, 2023 Comments Off on Meet Jim Obergefell, ALS Advocate

Before 2011, Jim Obergefell knew very little about ALS until his partner of 21 years, John Arthur, was diagnosed with the disease. Living in Ohio, they connected with the Central…

Sleep in amyotrophic lateral sclerosis: A systematic review and meta-analysis of polysomnographic findings

July 15, 2023 Comments Off on Sleep in amyotrophic lateral sclerosis: A systematic review and meta-analysis of polysomnographic findings

Highlights

Community Gathers for the 2023 Kern County Walk to Defeat ALS® Kickoff and Movie Night,
Featuring a Special Screening of a PBS Documentary Featuring Charlie Wren

July 14, 2023 Comments Off on Community Gathers for the 2023 Kern County Walk to Defeat ALS® Kickoff and Movie Night,
Featuring a Special Screening of a PBS Documentary Featuring Charlie Wren

The Golden West Chapter will host the Kern County Walk to Defeat ALS Kickoff and Movie Night on Thursday, July 20, 2023 at Studio Movie Grill in Bakersfield. The Kickoff…

Artificial intelligence helps ALS patients preserve their voices

July 12, 2023 Comments Off on Artificial intelligence helps ALS patients preserve their voices

With the help of artificial intelligence, ALS patients are able to preserve their ability to speak. Dr. Jon LaPook has more.

Q&A: Using software engineering to bring back speech in ALS

July 12, 2023 Comments Off on Q&A: Using software engineering to bring back speech in ALS

Erin Kunz took a circuitous route to studying the brain. The third year PhD student in Electrical Engineering started her career developing autonomous vehicles at General Motors (GM) — but now…

Researchers report advance in immunotherapy against ALS

July 12, 2023 Comments Off on Researchers report advance in immunotherapy against ALS

New research suggests that targeting autoimmune inflammation associated with amyotrophic lateral sclerosis (ALS) using two drugs, one of them already approved for multiple sclerosis, could be a promising approach for…

My ALS Story – Steve Witt and His Family

July 11, 2023 Comments Off on My ALS Story – Steve Witt and His Family

Steve Witt was diagnosed with ALS in May 2022. As a former copywriter at several New York advertising agencies for much of his career, Steve decided to put his writing…

Celebrating 3rd Annual Lou Gehrig Day and Major League Baseball

July 7, 2023 Comments Off on Celebrating 3rd Annual Lou Gehrig Day and Major League Baseball

The Golden West Chapter is proud to have celebrated the 3rd Annual Lou Gehrig Day in partnership with Major League Baseball, which honors the legacy of Lou Gehrig and all…