Month: May 2023

ALS Awareness Month Proclamations and Activities in Hawaii

May 26, 2023 Comments Off on ALS Awareness Month Proclamations and Activities in Hawaii

The Golden West Chapter is grateful to our ohana on the islands for their continuing efforts to raise ALS awareness throughout ALS Awareness Month. Our ALS families on the island…

Mayor of Calabasas signs Proclamation recognizing May’s ALS Awareness Month

May 24, 2023 Comments Off on Mayor of Calabasas signs Proclamation recognizing May’s ALS Awareness Month

On Wednesday, May 24, the Mayor of Calabasas, David Shapiro, signed a proclamation to recognize May as ALS Awareness Month in the City of Calabasas. Mayor Shapiro advocated for the…

First photo: Pat Dolan with his wife Mara. Second photo: Pat Dolan with loved ones at Inland Empire Walk to Defeat ALS.

Meet our 2023 Hero Award Recipient – Pat Dolan

May 19, 2023 Comments Off on Meet our 2023 Hero Award Recipient – Pat Dolan

The ALS Association and the Golden West Chapter announce the selection of Pat Dolan as a recipient of the 2023 Hero Award! The Hero Award, the highest honor given by…

Important Update on Insurance Denials by Cigna and Others of Drugs Approved to Treat ALS

May 11, 2023 Comments Off on Important Update on Insurance Denials by Cigna and Others of Drugs Approved to Treat ALS

We continue to press Cigna to reverse course and make Relyvrio treatment available for people living with ALS on Cigna plans. While Cigna initially revised its policy, those changes were…

Celebrating the Successes of ALS Research Today, While Working to Fund More for the Future

May 9, 2023 Comments Off on Celebrating the Successes of ALS Research Today, While Working to Fund More for the Future

This last year has seen incredible progress in the fight to create a world without ALS. The FDA approval of Relyvrio (AMX0035) in 2022 and Qalsody (tofersen) last month are…

May 2023 | Monthly eNewsletter from the Golden West Chapter

May 7, 2023 Comments Off on May 2023 | Monthly eNewsletter from the Golden West Chapter

Our May eNewsletter is in your inbox now or you can view it online! This month is ALS Awareness Month! Join together with The ALS Association Golden West Chapter and…

Regenerative Medicine: A New Path for ALS Treatment

May 1, 2023 Comments Off on Regenerative Medicine: A New Path for ALS Treatment

A first-of-its-kind stem cell therapy for ALS passes a critical safety benchmark, advancing the search to slow down, reverse and prevent the disease. In a parallel study, investigators are growing…