Month: December 2022

Roberta Flack reveals ALS diagnosis, making it “impossible to sing”

December 30, 2022 Comments Off on Roberta Flack reveals ALS diagnosis, making it “impossible to sing”

Wife of Hal Finney Announces Bitcoin Charity Event

December 30, 2022 Comments Off on Wife of Hal Finney Announces Bitcoin Charity Event

The ‘Running Bitcoin Challenge’ in Hal Finney’s memory is on again

December 30, 2022 Comments Off on The ‘Running Bitcoin Challenge’ in Hal Finney’s memory is on again

“Not Going Quietly” with Ady Barkan and Nick Bruckman

December 21, 2022 Comments Off on “Not Going Quietly” with Ady Barkan and Nick Bruckman

In December 2022, Judy Heumann interviewed activist and person living with ALS, Ady Barkan, about his documentary, Not Going Quietly, which follows his journey into progressive politics after being diagnosed…

Natalie Woody: Growing Up with My Dad and ALS

December 20, 2022 Comments Off on Natalie Woody: Growing Up with My Dad and ALS

ALS affects all people in the family – including kids. And while most ALS youth caregivers demonstrate amazing resilience and grace, they have complex experiences and feelings when living with…

Kayla Turochy: Lamar Helped Me Find My Voice

December 15, 2022 Comments Off on Kayla Turochy: Lamar Helped Me Find My Voice

Kayla met Lamar Woody back in 2017 at the music store where he taught voice and piano lessons. As her very first vocal coach, Lamar will always have a special…

Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver

December 12, 2022 Comments Off on Kristina Woody, Full-Time Nurse, Wife, Mother and ALS Caregiver

Kristina met Lamar Woody in high school, although it wasn’t until college when they really found their true connection. Lamar loves to tell everyone Kristina was the prettiest girl in…

Lamar Woody and his family, Living with ALS

December 10, 2022 Comments Off on Lamar Woody and his family, Living with ALS

Lamar and Kristina Woody are a lot like any other busy, hard-working couple. They’re juggling careers, education and the day-to-day activities of their sassy and smart nine-year-old daughter, Natalie. Married…

The Golden West Chapter to honor the California ALS Research Network with the Essey Commitment to Cures Award

December 9, 2022 Comments Off on The Golden West Chapter to honor the California ALS Research Network with the Essey Commitment to Cures Award

The Golden West Chapter will honor the members of the California ALS Research Network with the Essey Commitment to Cures Award at their Champions for Cures and Care celebration on…

Cytokinetics Presents Data at the Virtual 33rd International Symposium on ALS/MND

December 8, 2022 Comments Off on Cytokinetics Presents Data at the Virtual 33rd International Symposium on ALS/MND

SOUTH SAN FRANCISCO, Calif., Dec. 08, 2022 (GLOBE NEWSWIRE) — Cytokinetics, Incorporated (Nasdaq: CYTK) today announced that data were presented at the Virtual 33rd International Symposium on ALS/MND related to…